In 2022, a working group of the National Advisory Neurological Disorders and Stroke (NANDS) Council was convened to develop a Research Roadmap for ME/CFS, which will identify research priorities to move the field toward translational studies and clinical trials. Part of the process includes holding a series of public webinars to assess current efforts and identify opportunities for research. The final roadmap will be presented at the NANDS Council meeting on May 15-16, 2024.

The working group includes ME/CFS basic and clinical experts from the research community, leaders of ME/CFS non-profit advocacy and research organizations, as well as people with lived experience (i.e., individuals with ME/CFS, those with a family history of ME/CFS, caregivers/care partners, and/or patient advocates).

Please visit the NANDS Council ME/CFS Research Roadmap Working Group webpage to learn about the overall process.


The ME/CFS Research Roadmap webinars are virtual events open to the public during which ME/CFS experts will present current research, knowledge gaps, and future research opportunities for ME/CFS. Register here. The webinar topics include:

  • Nervous System
  • Immune System
  • Metabolism
  • Genomics/Genetic Susceptibilities
  • Chronic Infections
  • Physiology
  • Less Studied Pathologies
  • Circulation

These events also provide additional opportunities for questions, comments, and new ideas from interested stakeholders and the broader ME/CFS community, including researchers, clinicians, advocates, those living with ME/CFS, and others. Learn about who is participating in webinar planning by visiting the who we are page.