Advancing ME/CFS Research: Identifying Targets for Intervention and Learning from Long COVID [ME/CFS Research Conference]
Event Information
The NIH sponsored conference entitled “Advancing ME/CFS Research: Identifying Targets for Intervention and Learning from Long COVID” will take place in Masur Auditorium, Clinical Center on the NIH Campus on December 12-13, 2023. The goal of the conference is to present the state of the science of ME/CFS research and identify targets for potential interventions that have arisen from the literature and clinical evidence from ME/CFS and Long COVID observations. The audience is expected to be scientists, clinicians, individuals with lived experience and other ME/CFS stakeholders. The Conference will be hybrid and will be webcast and publicly available.
Conference Organizing Committee
Co-Chairs of the Conference are Andrew Grimson, PhD from Cornell University and Nancy Klimas, MD from Nova Southeastern University. Additional Committee members: Oved Amitay, Solve MECFS Initiative; Megan Carnes, PhD, RTI; Cort Johnson, Health Rising; Laurie Jones, #MEAction; Avindra Nath, MD, NIH/NINDS; Linda Tannenbaum, Open Medicine Foundation; Jarred Younger, PhD, University of Alabama, Birmingham; Joseph Breen, PhD, NIH/NIAID; Vicky Whittemore, PhD, NIH/NINDS
Registration
Registration is now open for the upcoming research conference, “Advancing ME/CFS Research: Identifying Targets for Intervention and Learning from Long COVID,” which will take place on December 12-13, 2023 at NIH Campus in Bethesda, MD. This will be a hybrid meeting where you may attend in-person, or virtually via your browser by joining the NIH Videocast, a live-streaming video platform. For more information about the conference, click here.
Draft Agenda
Advancing ME/CFS Research: Identifying Targets for Intervention and Learning from Long COVID
DAY 1 – December 12, 2023
Welcome – Joe Breen (NIAID) and Vicky Whittemore (NINDS)
Walter Koroshetz, MD; Director, NINDS
Session One (Immunology)
Individual with Lived Experience – TBN
Mark Davis, PhD – Stanford University
Derya Unutmaz, PhD – Jackson Laboratories
Additional Speakers – TBN
Late-breaking presentation(s) from Young Investigator Workshop
Session Two (Virology)
Individual with Lived Experience – TBN
W. Ian Lipkin, MD – Columbia University
Avindra Nath, MD – NIH/NINDS
Additional Speakers – TBN
Late-breaking presentation(s) from Young Investigator Workshop
Session Three (Metabolism)
Individual with Lived Experience – TBN
Maureen Hanson, PhD – Cornell University
Karl Johan Tronstad, PhD – University of Bergen
David Systrom, Jr., MD – Brigham and Women’s Hospital
Additional Speakers – TBN
Late-breaking presentation(s) from Young Investigator Workshop
Session Four (Reports)
ME/CFS Research Roadmap Report
Lucinda Bateman, MD – Bateman Horne Center
Maureen Hanson, PhD – Cornell University
Additional reports – TBD
END of DAY 1
DAY 2 – December 13, 2023
Session Five (Long COVID and ME/CFS)
Individual with Lived Experience – TBN
Lucinda Bateman, MD – Bateman Horne Center
Additional Speakers – TBN
Late-breaking presentation(s) from Young Investigator Workshop
Session Six (Gene Regulation)
Andrew Grimson, PhD – Cornell University
Alain Moreau, PhD – University of Montreal
Additional Speakers – TBN
Late-breaking presentation(s) from Young Investigator Workshop
Session Seven (Neurology)
Individual with Lived Experience – TBN
Jarred Younger, PhD – University of Alabama, Birmingham
Additional Speakers – TBN
Late-breaking presentation(s) from Young Investigator Workshop
Session Eight (Microbiome)
Individual with Lived Experience – TBN
Speakers – TBN
Late-breaking presentation(s) from Young Investigator Workshop
Session Nine (Synthesis and Integration – panel discussion)
Panelists – TBN
Summary and Closing Thoughts