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{"id":4802,"date":"2022-09-28T18:48:29","date_gmt":"2022-09-28T18:48:29","guid":{"rendered":"https:\/\/event.roseliassociates.com\/me-cfs-research-roadmap\/?page_id=4802"},"modified":"2023-07-28T14:27:21","modified_gmt":"2023-07-28T14:27:21","slug":"share-input","status":"publish","type":"page","link":"https:\/\/event.roseliassociates.com\/me-cfs-research-roadmap\/share-input\/","title":{"rendered":"Share Input"},"content":{"rendered":"\t\t
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SHARE INPUT<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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The ME\/CFS Research Roadmap will be informed by feedback from the broader ME\/CFS community, including scientists and people with lived experience. We encourage anyone invested in or impacted by ME\/CFS to attend the public webinars and share their questions, comments, and ideas about ME\/CFS research.<\/p>

You can visit the NANDSC ME\/CFS Research Roadmap Working Group webpage<\/a><\/span><\/span> to learn about the overall process.<\/p>

How can I share feedback?<\/span><\/h3>

There will be multiple opportunities for input throughout the process. You can attend the webinars, during which there will be opportunities for public comment and\/or Q&A sessions. You can also use the crowdsourcing tool IdeaScale<\/a><\/span><\/span> to contribute additional ideas and recommendations after each webinar. Details about IdeaScale are forthcoming. You can also provide comments at any time by sending an email to MECFSResearchRoadmap@ninds.nih.gov<\/span><\/span><\/a>.<\/p>

Information on upcoming feedback opportunities will be posted on the website and shared via the NIH ME\/CFS listserv. Sign up for listserv updates\u00a0here<\/a><\/span><\/span>.<\/p>

Why do we want and need your insight and how will we use the information?<\/span><\/h3>

Your feedback is important because it may help shape recommendations for research on ME\/CFS. A National Advisory Neurological Disorders and Stroke (NANDS) Council working group comprised of scientists, clinicians, leaders of non-profit advocacy and research organizations, and people with lived experience have been working together to identify research priorities for ME\/CFS.<\/p>

Comments from the broader ME\/CFS community will help the working group identify the most critical areas for inclusion in a research roadmap. The goal is to include priorities that are most appropriate and beneficial for those impacted by ME\/CFS, while also moving the field closer to translational studies and clinical trials.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

SHARE INPUT The ME\/CFS Research Roadmap will be informed by feedback from the broader ME\/CFS community, including scientists and people with lived experience. We encourage anyone invested in or impacted by ME\/CFS to attend the public webinars and share their questions, comments, and ideas about ME\/CFS research. You can visit the NANDSC ME\/CFS Research Roadmap…<\/p>\n","protected":false},"author":10,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-4802","page","type-page","status-publish","hentry"],"aioseo_notices":[],"aioseo_head":"\n\t\t\n\t\n\t\n\t\n\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t