{"id":4802,"date":"2022-09-28T18:48:29","date_gmt":"2022-09-28T18:48:29","guid":{"rendered":"https:\/\/event.roseliassociates.com\/me-cfs-research-roadmap\/?page_id=4802"},"modified":"2023-07-28T14:27:21","modified_gmt":"2023-07-28T14:27:21","slug":"share-input","status":"publish","type":"page","link":"https:\/\/event.roseliassociates.com\/me-cfs-research-roadmap\/share-input\/","title":{"rendered":"Share Input"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-page\" data-elementor-id=\"4802\" class=\"elementor elementor-4802\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-b4aad27 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"b4aad27\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-e3f0109\" data-id=\"e3f0109\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-48b2cfb elementor-widget elementor-widget-spacer\" data-id=\"48b2cfb\" data-element_type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-a8e6f52 elementor-widget elementor-widget-heading\" data-id=\"a8e6f52\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h1 class=\"elementor-heading-title elementor-size-default\">SHARE INPUT<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-b00a543 elementor-widget elementor-widget-spacer\" data-id=\"b00a543\" data-element_type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-34c9e69 elementor-widget elementor-widget-text-editor\" data-id=\"34c9e69\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>The ME\/CFS Research Roadmap will be informed by feedback from the broader ME\/CFS community, including scientists and people with lived experience. We encourage anyone invested in or impacted by ME\/CFS to attend the public webinars and share their questions, comments, and ideas about ME\/CFS research.<\/p><p>You can visit the <span style=\"text-decoration: underline;\"><span style=\"color: #3366ff; text-decoration: underline;\"><a style=\"color: #3366ff; text-decoration: underline;\" href=\"https:\/\/www.ninds.nih.gov\/about-ninds\/who-we-are\/advisory-council\/nandsc-mecfs-research-roadmap-working-group\">NANDSC ME\/CFS Research Roadmap Working Group webpage<\/a><\/span><\/span> to learn about the overall process.<\/p><h3><span style=\"color: #000000;\">How can I share feedback?<\/span><\/h3><p>There will be multiple opportunities for input throughout the process. You can attend the webinars, during which there will be opportunities for public comment and\/or Q&amp;A sessions. You can also use the crowdsourcing tool <span style=\"text-decoration: underline;\"><span style=\"color: #3366ff;\"><a style=\"color: #3366ff; text-decoration: underline;\" href=\"https:\/\/ninds.ideascalegov.com\/\">IdeaScale<\/a><\/span><\/span> to contribute additional ideas and recommendations after each webinar. Details about IdeaScale are forthcoming. You can also provide comments at any time by sending an email to <a href=\"mailto:MECFSResearchRoadmap@ninds.nih.gov\"><span style=\"text-decoration: underline;\"><span style=\"color: #3366ff; text-decoration: underline;\">MECFSResearchRoadmap@ninds.nih.gov<\/span><\/span><\/a>.<\/p><p>Information on upcoming feedback opportunities will be posted on the website and shared via the NIH ME\/CFS listserv. Sign up for listserv updates\u00a0<span style=\"text-decoration: underline;\"><span style=\"color: #3366ff;\"><a style=\"color: #3366ff; text-decoration: underline;\" href=\"https:\/\/list.nih.gov\/cgi-bin\/wa.exe?A0=NIH-MECFS_INFORMATION\">here<\/a><\/span><\/span>.<\/p><h3><span style=\"color: #000000;\">Why do we want and need your insight and how will we use the information?<\/span><\/h3><p>Your feedback is important because it may help shape recommendations for research on ME\/CFS. A National Advisory Neurological Disorders and Stroke (NANDS) Council working group comprised of scientists, clinicians, leaders of non-profit advocacy and research organizations, and people with lived experience have been working together to identify research priorities for ME\/CFS.<\/p><p>Comments from the broader ME\/CFS community will help the working group identify the most critical areas for inclusion in a research roadmap. The goal is to include priorities that are most appropriate and beneficial for those impacted by ME\/CFS, while also moving the field closer to translational studies and clinical trials.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>SHARE INPUT The ME\/CFS Research Roadmap will be informed by feedback from the broader ME\/CFS community, including scientists and people with lived experience. We encourage anyone invested in or impacted by ME\/CFS to attend the public webinars and share their questions, comments, and ideas about ME\/CFS research. You can visit the NANDSC ME\/CFS Research Roadmap&#8230;<\/p>\n","protected":false},"author":10,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-4802","page","type-page","status-publish","hentry"],"aioseo_notices":[],"_links":{"self":[{"href":"https:\/\/event.roseliassociates.com\/me-cfs-research-roadmap\/wp-json\/wp\/v2\/pages\/4802","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/event.roseliassociates.com\/me-cfs-research-roadmap\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/event.roseliassociates.com\/me-cfs-research-roadmap\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/event.roseliassociates.com\/me-cfs-research-roadmap\/wp-json\/wp\/v2\/users\/10"}],"replies":[{"embeddable":true,"href":"https:\/\/event.roseliassociates.com\/me-cfs-research-roadmap\/wp-json\/wp\/v2\/comments?post=4802"}],"version-history":[{"count":74,"href":"https:\/\/event.roseliassociates.com\/me-cfs-research-roadmap\/wp-json\/wp\/v2\/pages\/4802\/revisions"}],"predecessor-version":[{"id":5371,"href":"https:\/\/event.roseliassociates.com\/me-cfs-research-roadmap\/wp-json\/wp\/v2\/pages\/4802\/revisions\/5371"}],"wp:attachment":[{"href":"https:\/\/event.roseliassociates.com\/me-cfs-research-roadmap\/wp-json\/wp\/v2\/media?parent=4802"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}